Saturday, August 1, 2015


As the news has rapidly spread via social media, I am here to let everyone else in on the exciting results of my chest CT scans. 

All three tumors in my lungs are completely resolved!!!
With cancer, positive scan results are naturally approached with a tentative spirit. However, our Oncology team said they couldn't have asked for better news. This could not have come at a better time (not to mention it was the first round of scans)! Right now, we will take all the good news that is sent our way. With the diminishing of the lung tumors, this tells us two major developments:

First and foremost- the chemo is working!!
And secondly, this could mean no lung radiation. If the radiation field is focused on the lungs, there are many "not pretty, long-term" side effects.

Now let me see if I can bring you up to speed. 

(One of our favorites, Katy Z, after winning the "Daisy Award" in recognition of her incredible nursing skills, attitude, and all her awesomeness!)
I just finished five days of inpatient chemotherapy. 
This was round nine (9 out of 36). This round was actually better due to the fact that I can remember everything. My team revamped my nausea regimen- and tailored it to allow my brain to be less sedated.  

(Emily and I with my "Diabetes Care Package" as I headed out for my MRI scans)

This stay also brought on the new reality of radiation.
What we know right now is that we will be having roughly 6-8 weeks of radiation- 5 days a week. Honestly I am a bit nervous as the world of radiation brings with it a whole set of side effects and dangers. Yet again, it is time to smile and leave the "thinking it through" behind myself. 

I get this next week off, and with my feet on the mend I would like to try and enjoy it. 

Just going for a run sounds amazing. In fact, just going back to school and stressing over my nursing classes sounds even better! Perspective is a thought-provoking mind game. Before cancer, it was always something "so hard," "so annoying" . . . Now? Now- I would give anything for those days. 

I look forward to the day when I get to live without Ewing's . . . when I get to simply be a pediatric nurse . . . when I get to say, "I had Ewing's Sarcoma." 

(Lighting up P4! We hoped these lights would bring "rays of happiness" to others, as it did us)


  1. Caleb, I am praising the Lord for the good news about your lungs!!! Yet, I'm still praying for you as I know you have a long journey ahead of you. Love and prayers.

  2. So thankful for this great news! God has done great and mighty things! Jeremiah 33:3

  3. Yah!!!!!! Thank you lord. My dreams were full of you and your family last night Caleb. Even in my dreams I could feel the lords presence in you all. So happy for you and this news!!

  4. Hi Caleb, my name is Julie. My oldest was diagnosed with Type 1 and Celiac Disease 2 years ago. It's been a long journey, but by the Lord's grace, we're doing well. I started following your blog shortly after Turbo's diagnosis, and when I shared with him about your diabetes AND cancer, he's been requesting that we pray for you (he's now 10). He will be thrilled to know of your great report! Thanks for sharing your journey with us - the good, the bad, and the in-between. You are going to make a phenomenal pediatric nurse!

  5. Praise the Lord!!! Still praying for you and your family on a daily basis. :) We love you, and are so thrilled for the good news!! Thank you Lord, for taking care of Caleb and his family. :)


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