Unless you are a Type One Diabetic, or live with a Type One Diabetic, I don't expect you to understand what living with T1D is like.
I don't expect that of you - because I can't expect that of you.
I can't expect you to understand what it's like to wake up at 5 AM in the morning because your blood sugar is low... I can't expect you to understand what it's like to rip a site out of your arm while putting on a shirt... I can't expect you to understand what its like when one of our blood sugars is 400 and we can't fall asleep... I can't expect you to understand what its like when one of us wants to go to bed, but a "No Delivery" will have us do the opposite... I can't expect you to understand the emotional toll that diabetes takes... I can't expect you to understand the fact that this battle is 24/7, a battle with a careless disease that never stops...
So why say all of this? Why force you to read something that may seem "wordy" and maybe even "empty?"
The reason I do is this:
In this fight we can't win our reality does not stop, and the pain does not subside.
It seems that the longer I'm in this, the more and more people expect us to fit in with their normal, to give of ourselves, or to be more "involved." It seems that the expectations continue to rise because "obviously" Type One gets easier.
Here's the truth- who we were died with our pancreases.
It is this way for every T1D: it's not optional. There are things in life that are not easy to go out and do. You can't do anything without preparation, can't go anywhere without plans, and can't accomplish anything without a strategy.
Is this bad? No... this is our "normal" - we have to adapt.
I could go on - use more example and expound on various T1D issues - but I won't.
I'm simply making one request: please be caring.
Caring doesn't mean you have to understand: it doesn't mean you have to do or physically say anything. It just requires you to think.
Think before you speak, and think about just a snippet of what T1D entails.
I'm not asking you to understand Type One Diabetes . . . I'm just asking you to care.
We have reached the middle of November- Diabetes Awareness Month!
Though I have not done a good job of daily keeping up with different challenges, posts, activities, etc- I know we have had an awesome month helping raise awareness!
(Hannah/Daniel's Classmates&Teachers creating the "Blue Circle")
I would like to say a BIG "Thank You" to all of my FB friends, college buddies, and Daniel and Hannah's school friends for showing so much support! It has been incredible! I love it when I see this icon...
- scattered throughout thousands of FB Profile Pictures. :) It is truly awesome to see how many participated in the Thunderclap Campaign by JDRF. Through it, 2,555,000 people have been reached via social networking!
All this to leads me to a surprising yet frequently asked question: Why raise awareness?
So the first thing that comes to my mind when asked this question is... "Why not!?" But (obviously) the people asking this question need more than a question in return. So here it is:
1) Awareness is Support
The whole reason people are out there trying to spread awareness is to show their support for those fighting this disease! Actions go beyond words. It's not a matter of only saying something, it's a matter of doing something in order to raise awareness for those that don't understand. Why is this important? Because the more people that understand, the better the chance of raising support for a cure. I understand, I have done the research and I hate even addressing this topic. Logically, a cure is about 2 life-times out. But hey, it's the 21st century, and Fredrick Banting discovered insulin when everyone said it was impossible!! Don't give up quiet yet. ;)
2) Awareness is Safety
A misdiagnosis for someone that really has T1D can be huge. Raising awareness could be a deciding factor that might save someone's life! Misdiagnoses and incorrect information can be big factors for a case of Type One Diabetes. Not only this, but raising awareness is creating a "safety net" for T1s! Think about it: if you found a person passed out on the ground and saw that they had a diabetic ID, insulin pump, or glucose (blood sugar) meter - you would have a huge advantage over someone who has never heard of Type One Diabetes. (I assume you have read/ watched the information displayed throughout this blog) My point is this: being silent about T1D doesn't improve safety. Why wouldn't you want to encourage protection for people with T1?
3) Awareness is Hope
For those who have just chosen to be pessimistic about "Diabetes Awareness," that's your choice. Just don't let your negative viewpoint be the pin that bursts the bubble of hope to which many still hold. Many special people have taken their time to do some pretty incredible things for diabetes awareness- and that's awesome! Let's keep this energy flowing and keep spreading awareness!
To show some of these efforts, here are a few photos from across the globe...
So a little explanation for these video ideas. We are using these videos to work through commonly asked questions. Not only do using different effects help bring humor to the videos, but it helps us be able to easily diffuse diabetic myths!
I know some may wonder why the "chipmunk voices, big eyes, and poor video quality"? The fact is that simple and funny help transform boring topics into something that can at least capture one's attention long enough for the information to sink in!