Tuesday, November 18, 2014

Why Awareness?

We have reached the middle of November- Diabetes Awareness Month! 

Though I have not done a good job of daily keeping up with different challenges, posts, activities, etc- I know we have had an awesome month helping raise awareness!

(Hannah/Daniel's Classmates&Teachers creating the "Blue Circle")

I would like to say a BIG "Thank You" to all of my FB friends, college buddies, and Daniel and Hannah's school friends for showing so much support! It has been incredible! I love it when I see this icon...
- scattered throughout thousands of FB Profile Pictures. :) It is truly awesome to see how many participated in the Thunderclap Campaign by JDRF. Through it, 2,555,000 people have been reached via social networking!

All this to leads me to a surprising yet frequently asked question: Why raise awareness?

So the first thing that comes to my mind when asked this question is... "Why not!?" But (obviously) the people asking this question need more than a question in return. So here it is: 

1) Awareness is Support 

The whole reason people are out there trying to spread awareness is to show their support for those fighting this disease! Actions go beyond words. It's not a matter of only saying something, it's a matter of doing something in order to raise awareness for those that don't understand. Why is this important? Because the more people that understand, the better the chance of raising support for a cure. I understand, I have done the research and I hate even addressing this topic. Logically, a cure is about 2 life-times out. But hey, it's the 21st century, and Fredrick Banting discovered insulin when everyone said it was impossible!! Don't give up quiet yet. ;)

2) Awareness is Safety 

A misdiagnosis for someone that really has T1D can be huge. Raising awareness could be a deciding factor that might save someone's life! Misdiagnoses and incorrect information can be big factors for a case of Type One Diabetes. Not only this, but raising awareness is creating a "safety net" for T1s! Think about it: if you found a person passed out on the ground and saw that they had a diabetic ID, insulin pump, or glucose (blood sugar) meter - you would have a huge advantage over someone who has never heard of Type One Diabetes. (I assume you have read/ watched the information displayed throughout this blog) My point is this: being silent about T1D doesn't improve safety. Why wouldn't you want to encourage protection for people with T1?

3) Awareness is Hope

For those who have just chosen to be pessimistic about "Diabetes Awareness," that's your choice. Just don't let your negative viewpoint be the pin that bursts the bubble of hope to which many still hold. Many special people have taken their time to do some pretty incredible things for diabetes awareness- and that's awesome! Let's keep this energy flowing and keep spreading awareness! 

To show some of these efforts, here are a few photos from across the globe...
 

 Taiwan
 Governor Walker's Residence, USA
 Thessaloniki, Greece
Blackpool Tower, England
 
Happy Blue November!!

Sunday, November 16, 2014

Diabetes4Dummies!

Hey hey hey! It's Diabetes4Dummies Video #3! :)

I will have you know that a new actual blog-post will be coming shortly. It will recount all of our World Diabetes Day happenings! 

For now, enjoy the new video! ;)

Tuesday, November 4, 2014

Diabetes 4 Dummies!!!

Not only has the second video been posted to YouTube, but we have acquired a title for our series:


So a little explanation for these video ideas. We are using these videos to work through commonly asked questions. Not only do using different effects help bring humor to the videos, but it helps us be able to easily diffuse diabetic myths! 

I know some may wonder why the "chipmunk voices, big eyes, and poor video quality"? The fact is that simple and funny help transform boring topics into something that can at least capture one's attention long enough for the information to sink in!

Hope that makes sense! :) 

Feel free to comment any thoughts or ideas! 

Keep on representing!!!! 


 

Sunday, November 2, 2014

Project Blue November!

Okay, so we have an entire month to create a voice for T1D. Anyone can do this! 

Opposed to last year, the T1Trio is trying different routes of involvement using social media with a side of humor. ;) 

Though this is slightly amateur, slightly; we have created our first YouTube video. 

We are completely open to any thoughts and comments. Depending on the response, we may work to raise the quality and time invested in videos.

Let's see how this runs. ;) 



FYI: November 14, World Diabetes Day!!!


Sunday, October 19, 2014

Camp Marrakesh

First off, I would love to welcome all of my new friends/families that have found my blog from Marrakesh! This is it! :) I started the blog a week after my diagnosis. You can click the "Archive" button on the right side and click back till you find February of 2013. That is when the "T1Trio" began. 



I find it difficult to transfer my thoughts into words . . . to simply type out the experience my whole family encountered over the small period of two days. 

Below are a few thoughts to sum up our weekend:

First of all, the connection. There is nothing like going to a camp that you know very little about, with people you know nothing about (except they're Type One- which makes them awesome!), and attempting to get to know them. 

In most instances, I wouldn't know what to say, how to act, what to do . . .  yet within 15 minutes of arriving at Marrakesh, our entire family was spread out at numerous tables building relationships with people that could last for the rest of our lives! 

What we experienced as a family was not just meeting people but falling in love with them. We were connecting on a deep level: sharing our hearts, our fears, our pains, and most importantly - our hope! 


Secondly, the kids were absolutely incredible. Not only did they breeze through the management side (finger pokes, shots, lows, highs), but they were inspiring to everyone around them. All of the T1D campers had been diagnosed with Type One for only one year or less, which made their already-incredible management skills even more incredible! :) Getting to spend time with the kids reassured us that if they could do this, we could do this! That was one of the greatest highlights of the weekend: finding support in each other. 


And lastly, spending time with the adults. When the parents and children split, we all had opportunity to chat with the adults. The parents always have and always will be the ones carrying a primary part of the pain and pressure of this disease. Understanding this helps us to see into the reality of what these parents were going through. There is an overwhelming reality to what this disease holds and represents. Finding peace through this time is the key to coming to acceptance with the "new normal."

Our whole family was able to talk, share, love, cry, and relate on multiple levels to everyone at Marrakesh. I think that this was one of the most healing parts for our family. Being at only 4 years into our Diabetes Journey we are still at the beginning . . . we are still adjusting, and we are still learning. 


In conclusion, this weekend wasn't exactly about us getting to "host" a camp. We were able to help heal, and to be healed; to love and be loved; to inspire, and be inspired. 



Oh yes . . . and to laugh! If you don't laugh, you will probably start crying . . .  just saying.  ;)

Tuesday, October 7, 2014

Daniel's 4th Year Diaversary

Due to the fact that 90% of the 5,000 photos on my MacBook were taken by Daniel, I find it hard to find many pictures of him! I did my best and hope it gives you a little insight into his journey so far in this disease.

You are inspirational, Daniel. I have a lot to look up to in a younger brother. ;) 

Happy Diaversary! 

video

Thursday, September 25, 2014

It never gets easier...

I know, I know... I have been terrible about blogging lately and I apologize for that. I have just finished the first rounds of tests in college, all my drug screening/vaccinations for ER position which starts October 6th, and the other two T1Trio members have just about completed their first month of school!

Though the school year always proves to be crazy, it helps to look at the positive side of it! For one, I have already met four other Type Ones on campus!!! We eat lunch together, exchange numbers, and smile at each other when we hear the melodious sound of a pump alarm echoing in the dining common. :) 

Another bright spot is going to be Camp Marrakesh this coming October. It is a diabetes camp weekend run by the American Diabetes Association. The camp is for newly diagnosed (within 1 year of diagnosis) children and their families! This year we have been asked to be the host family! Pretty much we get to greet, speak, and interact on a personal level with the families. Our family is thrilled to take part in such an awesome opportunity. Getting to be with newly diagnosed families brings me to this question:

"How does one get past the "beginning" of their diabetic journey?"

A journey with a disease that works to ensnare your attention, joy, and hope.

 I feel like I have had diabetes for 10 years . . . in reality- its only been 1 1/2 years. That's not very long. 

At max our family has had diabetes in our life for 4 1/2 years. That's not very long either.

I look for it to get easier. Some people already assume that it is. We have three kids with the same disease, it seems like we have been dealing with this for a long time, we look like we have it all under control. 

And in a way we do. But at the same time, uncaring comments still cut, finger pricks still sting, insulin still burns, sites still become infected, insulin goes old, blood sugars go high, blood sugars go low . . . every detail of this disease still feels like a "big deal" to me. 

Will it always be this way? I'm not sure. 

I watch my new T1D friends that have this disease for 18+ years and still cringe at the pain of a finger prick, still have bad sites, and still have bad blood sugars;

But

I also see myself, my siblings, my T1 friends, and most T1s I meet have one common characteristic: we have to keep getting better.

As a fellow Blogger/D-Mom would say:

It never gets easier . . . you get better!


(Inspiration by Tina: www.stickwithitsugar.com)