Thursday, June 4, 2015

The Awesomes / Not Awesomes Update

Well hey there world! 

There's so much to write about and then the difficult task of, well, writing it. 

I had my first 5-day admitted Chemo. This was actually incredibly interesting in so many regards. As I sit here reminiscing of where I was just a week ago, it is like trying to think back to a year ago. How so? I'm not sure. I suspect either the chemo did it- or my nurses slipped some "forget-everything drug" into my port. 

Due to the fact that my awesome nurses are now part of my blogging audience, I'm gonna go with the chemo.

In my opinion, the 5d Chemo has wrecked many more side effects and havoc. Through the week of chemo, I "felt" like I was me. I slept a crazy amount - yet I still played soccer in the hallway with my PT dude, talked to my doctors (sometime), and did all the extremely thrilling things people do in hospitals . . . but I only vaguely remember all of it. My family has enjoyed fabricating false stories and now I have had to beg to find out whether they are true or not.

(My T1D nurses! If I look partially drugged ... it's because I was.)

Also during my stay I got to meet two of the nurses with T1 Diabetes. The one on the right is practically one of my main P4 nurses for the next year: we have a blast! All of my nurses are incredible - I just didn't get a picture with every single one. (I have a feeling I will be kindly reminded by the rest upon my return) They also have become fans of the "Diabetes4Dummies" videos Daniel and I put together - as they had ever so kindly referenced on the welcome board...

(If you haven't seen "Food Police", you can watch here)

Instead of rambling on, I thought I would conclude this update with my ER trip. As many of you heard, I was in the ER on Tuesday - for 14 hours. Although it was extremely complicated then, thankfully it is more simple now that we are on this side of it. Tuesday I was instructed to go to the ER after "blacking out" and also having low blood pressure/ sodium levels. Upon getting to the ER, my blood pressure was fine, but my heart rate was hitting 130s (should be 60-90s). To make a long story short, they had an EKG done, put me on fluids, and monitored me for 6 hours. I was very dehydrated from the 5d Chemo, my wonderful sleeping spells (wasn't drinking fluids), and high blood sugars (from Chemo). After my heart was stable, they re-evaluated and gave me the go-ahead to go home. 

Ten minutes from home, I get a call from the ER saying that I possibly had blood clots in my lungs - thus putting a strain on my heart. So, we turned back and headed up for an MRI. Due to a bad night in the ER, we waited 9 more hours and didn't get home till 6 AM. The tests came back negative on the MRI, and it was just my lovely Ewing's tumors in my lungs (EKG) and severe dehydration (heart rate) that caused the wonderful dilemma. Anyways, thank you all so much who were praying for me during the lengthy event.

In conclusion, thanks a million for your support, prayers, and encouraging messages you have sent! 
Small/big detail: my platelets and white blood cells are low so I may be going in for transfusion on Saturday/Sunday. I also have a 2 Day Chemo on Tuesday (if transfusion goes well), so if you could pray that my counts cooperate and I can stay on schedule that would be awesome! Seeing I have a year of this to go, I'd rather not get off track this early on. 

You guys are an amazing support group!! 

I'll update soon!

(My main activity during chemos, with my little princess)


  1. Hi Caleb,
    So glad to see your post this morning. I was worried when I saw your pic outside the ER. Keep your sense of humor. It will help in the days ahead. So thankful you have wonderful care and support. We are mostly thankful for the Lord's help. Do a study on the word "help" when you are feeling up to it. When I had cancer, it was a BIG encouragement to me.
    With love and much prayer,
    The Moritzes

  2. Thanks for the update we are praying for you and your family!

  3. Beautiful pic <3 Families are such a blessing! Praying Dear Friend! Mrs. Kusik

  4. Thanks for the update, Caleb! I think of you and pray for you and your family daily. LOVE the picture of you with Hannah. Sending lots of hugs and smiles for when you need them!

  5. Thank you for your testimony. Keep looking to Jesus. Will continue to pray🙏

  6. Definitely praying for you and your family! May God give all of you the strength, comfort, peace, and encouragement to get through this and press forward for the prize and His glory. Much love from Ed Wynn and Family

  7. I think of you every day, Caleb, and pray for you even more than that. You are an inspiration and your smiles are contagious. I hope that my grandchildren grow up to be as wonderful as you are.


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